The Bastardization of Beauty: Sick or Sexy?

Several years ago, my sister-in-law died of a rare form of cancer.  She was strangled from the inside out by something called pseudo-myxoma peritonei, or jellybelly.  A gelatinous cancer grows and cuts off inner organs, in her case, her digestive system.  Every few years, over a decade, she would have surgery to scrape out the substance, until there was just too much to remove.  Then, she quite literally starved to death.  Horrifying and sad. I wouldn’t wish this on anyone, ever.

However, being a woman who could go up and down in her weight range, especially as she aged,  Lori could enjoy at least one thing during the final years when she was sickly thin: the compliments, the size zero bragging rights.  “You look so Fabulous!”. And she almost seemed to forget that this had nothing to do with her choice. She was proud.  But then the end came near, and she was thinner, then even thinner, too tired to enjoy her model-like figure.

Yet the compliments continued.  She could only eat certain foods pureed, which would then mostly be emptied through a thick tube surgically attached to her belly.  Chew, swallow, remove. Not everyone knew that.  So you’d think that the people who asked, “What’s your secret?” could be forgiven.  However, our attachment to the svelte image is so powerful, that no, even those who knew Lori was dying, were an eesny bit envious of the fact that she was wearing  a teenager’s leggings.

This five foot seven woman who wasted away in front of our eyes was America’s standard of beauty. The constant imagery of The Thin has really screwed up our value system.

A year after she died, her sister, another of my dear SILs,  (which we affectionately address one another as Sissel) began having health problems of a different sort.  She has always had food issues, one week allergic to something, the next not.  Can’t eat chicken, can eat chicken.  Avoided sugar, yet jammed anything sweet into her mouth before she could stop herself. She, like the majority of women, began to battle her growing weight as she moved closer to middle age.

About six years ago, she was diagnosed with IGG deficiency. an autoimmune disease.  This helps explain her fluctuating food reactions.  Then last year, her Celiac artery was semi-blocked. Surgery successfully opened it.  Though no tests can show that her system has shut down, no test can illustrate a blockage anywhere, she is certain that she has gastroparesis or an intestinal blockage; she is able to eat hardly anything.  Gastroparesis is when the duodenum, the sphincter at the bottom of the stomach is paralyzed.

Her doctor goes along with it and uses the term gastroparesis loosely, believing my Sissel when she says she is full, nauseated, unable to eat another bite. My  SIL will swing between a diet of certain extremely bland (and fat-free) foods, a total liquid diet and nothing, stating that she just cannot eat another bite. The other day, my mother-in-law threw her annual corned beef and cabbage party, complete with Shamrocks and Irish Ditties.  When the rest of us, who ate like kings complained about “tickin'”, my SIL chimed in about how huge and uncomfortable she was, complaining about how hard it is to eat and nourish herself.

She had indulged in a calorie free bottle of Sobe, a soft cooked baby carrot, and half a water cracker (and those last two only because she just couldn’t resist.).  Her brother, my husband, asked her why she was drinking calorie free drinks if even water fills her up?  Good point.  If one supposedly cannot get sufficient calories without pain and effort, shouldn’t every sip have a calorie if possible? Well, she answered, she just doesn’t want sugar to be her calorie load.  She reports that her body can only digest about 800 calories a day and then seems to shut down, get backed up, become painful, nauseated. She wants her drinks to be for hydration only.  Yet even the calorie free drinks fill and block her.

Confusing.

Though the only evidence of a medical issue at this point is anecdotal, though we get conflicting illogical info from her all the time, we are all expected to play along, and feel sympathetic to this gastroparesis.  And we do.  The woman weighs herself every morning and evening.  This supposedly tells her if she is facing a few days of severe indigestion as her food just sits in her bowels, unmoving.  This weight change of a pound or two upward, lets her know she is about to be backed up.  Who cares that. EVERYone weighs more at the end of the day; she sees this as a sign and stops eating anything but a low calorie liquid diet.

I know that she might be right. She might really have a true medical event going on; she and her sister have had the rarest of conditions.  But then again, she might have an eating disorder.  Or she very well might be reliving her sister’s experience, sort of like men who suffer phantom pregnancies.  The two were very close, and Lori’s loss was painful for everyone.

Sissel has dropped 45 lbs. She hovers just beneath 100 lbs. Five foot 5..  If she drops below that, she will be forced on a feeding tube. Her legs look like a child’s, her ribs pronounced.  I feel sympathetic pain believing they might break just looking at them. She sleeps too much now, struggles to work because she lacks energy, literally.  800 calories ain’t much.

But again, everyone thinks SIL looks great!  (And they aren’t being kind and mannerly. They mean it. They wish. They envy. . . They joke about how to catch her “disease.”) SIL has been happily posting fresh pictures of her newly slender frame on FB.  Before that, she never bothered with Selfies. She has taken to wearing clinging clothes.  Her husband says how bitter sweet it is to see her wear things she hasn’t been able to fit in for over twenty-five years. Her mother’s friends compliment her on looking like a teenager.  My SIL loves this attention.  So do they.

Another close friend of ours spent last summer with a fever,  vomiting everything. Doctors finally found a perforation in her bowels. A possibly deadly diagnosis. They saved her, but not before she lost fifty lbs. Again, the compliments rolled in. She felt like hell for months as she healed, but even her mother began sniping about how beautiful she was now; don’t regain the weight. (Her mother has actually been hospitalized for an eating disorder.)

My husband and I discussed how insidious this imagery-this thinking- is. When we reverse the gender, the underweight physique is so obvious, even deplorable.  If my husband weighed 120 lbs., or even 140 lbs, comparably adjusted for his height and gender to match my sisters’ puny sizes, would anyone ogle him with delight?  Would any woman admit that this man would then be her sexual ideal the way some men can only be sexually attracted to emaciated women?  Tony loses three pounds, and the whole family thinks he is sick or working too hard.  But folks everywhere find malnourishment in women intoxicating.

I can’t. Not anymore. Take the show Modern Family: I see voluptuous Sophia Vergaro as a beauty; I now watch Julie Bowen uncomfortably, who if you review her career, is a skeleton of her former self. She didn’t get that way as she aged, naturally.

I know there are certain people who are genetically thin-ectomorphs make up a small portion of the American population.  But my two sisters and my friend, even Julie Bowen, aren’t those people.   My Sissel says she is already looking at a menu that will help her keep her new figure should she ever eat normally again. . .How does she not see the flaw in her design? To remain that small demands she doesn’t eat normally.

I’m also aware now of how few calories someone must choose to eat if they are middle aged and want to be as thin as my sister. Way too few.  Undernourishingly few.  To do so, those dieters are denying themselves not only the pleasure of food, but health.

I know that culture often defines what we perceive.  But seriously, has culture gone so far down the skinny path that we no longer recognize illness, physical (or even mental).  We now think, oh, such beauty, when we are actually seeing self-denial, self-punishment, anorexia, even death?

I know this is not an original complaint.  But really, just like we had to push to change the habit of getting a dark tan to remembering to wear sun screen, can we change the image of sexy back to something safer in women?  Can we look at a woman who weighs 142 lbs. and think, lovely, healthy, centered, sexy, ever again? I’ll bet Sophia Vergaro isn’t 100 lbs.

Thinking of Love: Nonverbally

I recently had an epiphany about romantic, expressive men.  And for a bonus, I also got the elusive relationship closure that so many of us seek.  It was a surprise gift from the universe. . .and my unsuspecting husband, Tony.

On New Year’s Day, I ran into a lover from my deep, dark past.  He, his grown daughter, my husband and I sat for about thirty minutes socializing, very quickly catching up. Meanwhile, Former Lover kept, as they say, making eyes at me.

This was not an affair that had ended well.  But it had ended so long ago, I no longer hurt to see him or speak with him.  We are both plumper, a tad greyer, and definitely more lined, but it felt like we had just seen each other the last week.  We chatted and joked briefly, and then my husband and I climbed into our minivan and sped away.

That was not the closure.  Former Lover had been a man who, met years after I lost my virginity, had actually woken my sex drive.  Our connection, though doomed, was immediate and ridiculously hard to define.

He was a musician and an artist.  No matter what time of day or night, he had some instrument of creation in his hands, a drum stick, a worn nub of charcoal, a guitar, maybe even a teapot.  It was not the Art or the Music that seduced me as is cliche; instead, his sheer joy while lost in his work and play was impossibly attractive. Oh, and he was.  . .is British, for all you Anglophiles out there.  I know, a sexual awakening, creative Brit?  Aren’t they supposed to be uptight and cold?  He wasn’t. Former Lover was prone to saying things about his heart beating faster or not being able to think straight when I was near.  And when words failed him, his body never did.

Much later, a short year into my relationship with my husband,  I was uncomfortable and feeling insecure.  I knew he loved me; he tells me so every day, in those exact words..  But. . .something was missing.  We had more than a few conflicts over the fact that he doesn’t give physical compliments very often.  And if he does, they come across as forced or awkward.  “Uh, well, don’t you look cute. . .”  At first, I just thought he was not verbal.  But, no, he was voted most talkative in his high school.  He can articulate. In fact, he fully compliments my cooking or my intelligence all the time. And one of his greatest assets his how much we talk, late into the night.

I then suspected that maybe, though attached to me, he didn’t really find me sexy or even pretty.  I figured, he was a practical man who had made a practical choice and had married the smart, talkative, nurturer, instead of the empty, distant model.  He would get perturbed, annoyed and then angry with me for voicing these thoughts.  But I periodically have had trouble shaking this sinking feeling.

I said to him, “There have been men in love with me before, a number of them who wanted to marry me. I KNOW what it feels like to have a man want me.”  And this wasn’t it.

I reflected back on the men who had loved me, some of whom I had loved in return.  All of them had been expressive about their love and their desire.  They would tell me how gorgeous my eyes were when they gazed longingly into them.  One man used to sigh into my then long, curly hair and go on and on about how he wanted to one day die in it.  (Not as creepy as it sounds when you are in the middle of being loved.)   One used to tell me I had the most delightful ass on the planet. Another, as I mentioned, described how pit-pattery he felt.  I believed every single word from these men. It was the passion they exuded, the eyes that seemed only for me, that made their musings true.  They openly and verbally reacted to my attempts to look nice when I dressed up, to my natural appearance, and my very smell.

NO, I am not a raving beauty.  But these were men who knew how to make me feel like I was.

And my husband isn’t one of those men.  Yet, that expressive passion I enjoyed from former beaus, even my ex-husband and Former Lover, is how I have always felt about my man. Tony.  He drives me insane with desire: His smarts, his goodness, his love making, his very being.  (To gain a picture, he somewhat resembles Clint Eastwood from the early Dirty Harry days. In fact, I had never found Clint a sex symbol until I fell in love with my husband.)  Whatever this former lover awakened in me, my husband puts to bed in the very best way.  He is the sort of lover every woman wants-gentle at times, considerate, but with just the right amount of manhandling to get his way.  I compliment him all the time.  I’d finally come to believe that inside, My husband feels the same way, when once, frustrated at my insecurities, he shouted, “You are the best thing that has ever happened to me.” Enough Said.

So. . .a few weeks after this reunion, you might suspect how I’d react to receiving an effusive email from Former Lover.  (He knows people who know me.)   In it, he expressed how much he was still feeling toward me, and easily tossed out these words:  “My relationship with you was the most honest, intelligent, intuitive, erotic, and fulfilling of my life.  You got into my psyche more deeply than anyone ever did.”  He went on to express how he wished we had married all those years ago, issues be damned, and gone and lived the last two decades together.  In less than so many words, he was secretly seeing if I was “available.”

Nice to hear 20 years later, eh?  Do you wonder if I was tempted?  He was off to Central America in a few weeks.  I could easily jump on a plane and restart my life all over again.

I was stunned.  Angry a little at the tardy sentiment.  Envious of once again hearing such fine words. Irritated that he thought it appropriate to interfere in my love cocoon.  But also tickled pink. Tickled, tickled, tickled.

Though Former Lover hoped I’d keep all this hush-hush, I immediately told my husband, full transparency.  I was uncertain how he’d take it.

In stride. His first comment: “See, you still got it, Baby.”  Well, hmmm. Okay, yes. After how many gained lines and pounds?  “This guy sees you after 20 years and thinks to himself, ‘I want some more of her. I made a grave mistake all those years ago.’”

I also told my husband how sometime earlier last year I had written an amends to this Former Lover-we both owed one to the other for blowing up quite a lot of our world when we imploded as lovers.  I had tried writing before years before, but now, in Al-Anon and working a 12 step program, I felt the need to do so, with full responsibility. I’d written a heartfelt note, but suddenly my computer frizzed as it can do.  My words of contrition all disappeared.  I saw this as a sign to keep my mouth shut and mind my business.

Tony tells me this:  “Making an amends is for you.  God knows you did so with good intent, and cleared your mind. It doesn’t matter that the guy didn’t receive it. That this guy surfaces only months later, we run into him accidently, and now he is ‘resmitten’ with you, gives you a sense that what had happened years ago was real, true emotions on both sides.  Doesn’t that feel good to know now?”

There’s the closure, especially since I can respond with an amends now.

Here’s the epiphany:  All the men who have loved me in the past have been EXPRESSERS in various ways, artists, writers, musicians, even a stand-up comic.  They dealt daily in the world of sharing what was inside their hearts and souls.  I had veered away from men like Tony-business and math-minded, practical, relatively conservative.  In college, those practical guys had been the ones who seemed too preppy, they peed in the ice machines, and date-raped women in their fraternity houses. (How’s that for a childish generalization.) I stayed away from them.  But somewhere in my middle age, I got sick of the liberally slanted men.  Getting a divorce from my son’s Dad, an artist who had taken over a decade to figure out a career where he could actually contribute money to the household had left me cold.  And all my other boyfriends-even this Former Lover in question- had spent their lives stumbling  along, too, leaving all the heavy lifting to their wives or girlfriends.

Opening my mind, once I was single again, I found this trustworthy, practical, dependable Man, Tony,( . . .and yes, a former frat boy,) who has trouble verbalizing his attraction and his love for me in more words than “I love you, Baby.”

I had sacrificed the oh, so easy sway of big, fat words, for the strength of a solid man’s man.  And I’ve only benefited.

Those loving words in the former lover’s email were very pretty.  But also extremely simple to say, and not do for that guy.  My husband finds it much easier to do than say.  He understands commitment in a way no one else in my world ever has- takes care of his part of our world and then spoons me to sleep.  He also stands in the greeting card aisle for hours, reading all the cards to find one that says what he cannot.

The other night, my oldest son met his Dad for a movie.  After the film, en-route to somewhere else, he had a crappy flat tire on a major highway, and couldn’t get the spare loose.  Whom did he call?  Not his artsy-emotional Dad whom he had just left, but his step-Dad, Tony who quickly gave him directions to wait in the car safely till he got there.

This stoic man is the love of my life; I’m his, and we both know it.

The Pain in Pain Management: Oxycontin + Stigma

A.K.A Me and Oxycontin.. . .The untidy world of pain killers and those people who need them is a bear to navigate. Doctor incompetence, stigma, recreational drug addicts, government pressure, and even pharmaceutical companies all take part in creating an uneasy, often unsuccessful route to ease a patient’s pain, namely mine.

I have never been a drug user or abuser, but now, Oxycontin is part of my daily living. Last Fall, I had an extensive injury and resulting surgery, the sort that any internet search will prove, leaves plenty of patients with chronic, debilitating pain. I am no miracle unfortunately, and I suffer from a spinal fusion from T-4-T11, 14 pins, three rods, and four laminectomies, missing bone. If you know someone who suffered a back fusion, they probably had 1-2 levels fused; I bet even so, they suffer. The hardiest of people might be perfectly fine and pain free within the next year, but apparently I am not one of those lucky people.

However, I am a good and honest patient.

My neurosurgeon and the doctor who ran the physical rehab center I entered right after the procedure came up with a mixture of pain meds. Prior to surgery, I was on a morphine drip and Neurontin. After the surgery for the first week I was on a combination of morphine, Dilaudid, and oxys in relatively high degrees compared to my current usage. I did not tolerate the dilaudid-waking nightmares. . .the sort that would make me try to climb out of bed to run down the hall. Since I could not even sit up without help, this was frightening. They took me off the dilaudid and started a combination of Oxycontin-which is a time released opiate, and oxycodone (aka Roxy), which is a quick acting form of the same medicine, Robaxin-a muscle relaxer, Neurontin-a nerve pain killer, and anti-vert-an anti vertigo medicine.

I left the hospital on all five medicines and could very well still be on all five in large doses. I am the one-not the doctors-who asked to wean down, partly because I didn’t like the side effects of my combo-drowsiness, absent mindedness, severe constipation-and partly because I was in denial and believed I could be back to work as soon as I was off of the drugs. I ignored the idea that maybe I would heal faster if I remained on the drugs. And I definitely seemed to think maybe I wouldn’t be in any pain. See. . . the pain killers work so well, I started to believe I was fine, sort of like people who think they don’t need antidepressants once their drugs start working.

Coming off the Neurontin wasn’t difficult. It is a drug that has to be weaned and cannot be stopped cold turkey. I followed my doctor’s advice. I also got myself down to taking the Robaxin only at night. It is still an effective medicine for me, but I don’t like its drowsy effects in the daytime.

With the doctor’s plan, I weaned myself down on the Oxycontin as well. However, once I got myself down to just 20 mgs of Oxycontin a day, with the oxycodone as my breakthrough medicine, I noticed I was in too much pain, and relying too often on the oxycodone. My doctor advised me to go back up to the time released amount of two 20mg pills a day of the oxycontin 5-6 months ago. And there I have remained.

I rarely ever have to take my break through meds, not because I am pain free, but because I actively try to suffer through medium pain simply because I do not want to raise my tolerance level. Plus, the side effects are almost negligible. Any chronic pain sufferer will tell you that their pain meds. allow them to feel normal, not high. When there is a real need, the brain adjusts. So I feel like myself most of the time now.

Which is where the incompetency of the medical world begins.

Oxycontin is one of the most highly controlled substances in America. Many legitimate pain clinics in the U.S. require patients to sign a contract when they receive oxycontin. Patients have to come in for blood tests periodically to make sure they are taking the correct dosage each day. They also have to appear with their remaining medicine on hand. If they are “over medicated” of course they are dropped from the practice. If they are UNDER, and they didn’t have the assumed correct remaining pills, they are dropped from the plan. The remaining pills that the patient carries are often dumped down the drain in front of the patient. The assumption is that over medication could mean the patient is using street drugs, too. Under medication could allow the patient wiggle room to sell his prescription drugs on the street for more than he or his insurance paid.

Makes sense. Apparently I am one of those under-medicators since I receive enough of my break through medicine- the oxycodone-better known as Roxy-to take 6 pills a day each month. If I did so, I would be on approximately 100 mgs of oxy a day, counting my Oxycontin. I don’t need that. I now probably take 1-3 a week on top of my time released medicines, so I have plenty lying around (locked safely away from teenagers). Which is a Doctor mistake. . .in my naïveté, it never occurred to me that real pain patients would suffer their pain just to sell their “extras.” I had a partying buddy once joke a few months ago that she could get me thousands of dollars for my left over Roxy. (Reread the word JOKE. I mean that, you government lurkers.)

I have always done what I am supposed to do (I follow my dosage of the time released pills though I use far less of the Roxy than I could): Only my doctor prescribes my meds.; I do what he thinks is right; I use the same pharmacist in his building each month. I create no red flags at all. What do I mean by red flags?

Well, like I said this is a highly controlled substance. Although it must be prescribed only monthly, on paper, not by email/fax, Abusers simply go to multiple pain clinics and pretend they have this or that ailment. They hit up multiple pharmacists. They create one person accidents just to go to the ER. They lay a serpentine trail that takes drug investigators too much time to trace. And of course, there are corrupt pain clinics, too. Just as marijuana shops in California have doctors on hand to pass out prescriptions to anyone who complains of a low appetite or eye pain, pain clinics across the country have former gynecologists or dermatologists ready to make quick money handing out scripts for bogus complaints. I do not fit anywhere into that picture.

When I first was released from the hospital/physical rehabilitation center, we had great difficulty finding a pharmacist who even had the medicines in large enough amounts to fill my prescription. They had to confirm this was a legitimate prescription, and then called around to sister locations to find enough to meet my needs. Apparently most of the locations keep very small amounts, sort of like Gas Stations that post they only have $100 on hand. This slows the Oxy thieves from robbing the place. Once the pharmacist found a place that had enough, we overheard him confirming that yes, he had actually seen the patient and was certain I needed the medicine (being in a wheel chair and with my armband still intact.)

We shifted after that first prescription fill to my doctor’s pharmacist, so we wouldn’t go through that every month (which is the broadest time frame this can be prescribed.). We have also hit the problem of our pharmacist sometimes not having enough, or my insurance company setting a weekly limit. We have literally walked away with 6 pills for the weekend because the pharmacist is not allowed to give me more until Monday. Some of this is caused by the FDA or insurance company restrictions. Some of this is caused by my surgeon. Because he is always in surgery, we have learned to ask for the refill a week before we need it, because sometimes it literally takes a week for his staff to get him seated with a pen in hand. And since this is a medicine that should not be stopped cold turkey, I cannot run the risk of waiting till the last second only to find they cannot reach him.

Busy as ever, he just auto-fills all my current prescriptions, So I always get just enough Oxycontin, way too many Oxycodones and Robaxin tablets. The last several times I picked up my medicine I just told the pharmacist not to fill the Robaxin and the Oxycodone, I didn’t need them. In my husband’s innocence, he joked with her that if she needed any-since they have so much trouble with supply-give us a call, we have plenty.

Har har. You should have seen the look on her face. This was before my friend who once managed a pain clinic told me about how closely doctors are monitored themselves, about how they make their patients throw out their extras. Most surgeons will send their patients to a pain clinic because they themselves do not want the FDA monitoring that goes with prescribing narcotics. But I did not go to a pain clinic. . .My neurosurgeon has always trusted me. I have never asked him for extra, Never asked him to move upwards in mgs. Never run out too soon from over use. Maybe it is trust. Maybe it is simply inexperience or inattentiveness on his part?

Enter the Devil in the Details.

Each year 15,000 people die from overuse or overdose of Oxy.. To put this in perspective, between 75,000 to 3.3 million alcohol-related deaths occur in the U.S. each year (depending on how the data fall and who reports in.) This is a huge difference. While no death is acceptable, there is a hysteria about Oxy that is ignored in much of the bigger picture of substance abuse. One Public Safety Commision report states that approximately 78, 000 people go to the ER annually for Acetaminophen overdose. Really? I am fascinated by how we pick and choose our battles.

The people I meet who swoon and tut-tut when they have learned of my medicine, never have any real-life experience to share. No legitimate patients who suffered or died. They’ve just “heard bad things. . .”

We vilify Oxycontin’s effectiveness by focusing on its overuse and overdose. But because alcohol (or even OTC painkillers) are so socially accepted, and because a ban on alcohol in the last century ended in the development of major crime families, no one is interested in this disparity. Maybe I should just drink my self stupid everyday. I’d be more socially accepted. In fact, we don’t even use the words overdose with Alcohol.

The danger in Oxycontin, as in alcohol or any drug, is exactly that: overuse and overdose.

Is there a difference? Yes. When I was in my Physical Rehab Center, the night nurses who are often second string staff had the right to give me a certain number of roxys (oxycodone) within a certain number of hours. I noticed they liked to give me extra pills, extra close, right before bedtime. Keeps me down for a while-no bed pan help-no roll over helps. . .one night a nurse I had not had before gave me that amount and tucked me in with a blanket. I woke a few hours later having sweated the bed to a pool. She had to change the sheets and my clothes and then promptly gave me an extra dose “to help me get back to sleep”. Within the hour, I was dozing and struggling to breathe. Have you ever had one of those dreams where you feel like you are awake but cannot move? This was very similar, but it was my lungs that wouldn’t move. This is how oxy kills. It depresses the respiratory system.

This is why people freak out about this medicine. But was that the med or the nurse?

No, this was an example of an overdose, and the nurse was reprimanded.

Overuse is when patients are like me, but they do not pay attention to their own body and push too fast to go up in dosages. Irresponsible doctors don’t slow them down
, so they quickly end up on 400mgs of oxy that no longer kills their pain. This is why I do not always give in to my own pain by hitting it with Roxy at every turn, and why some responsible doctors and clinics have some of their patients spend several weeks on methadone allowing their brains to see a lower amount of Oxy as effective. These are doctors who understand how to avoid overuse.

Sadly, some people, their pain is so severe that even this doesn’t work. When my sister-in-law was at the end of her decades long battle with cancer, she could walk around on enough morphine to kill a whale, yet she was still in pain. She was always tempted to do more and more, which is why the rest of us had the keys to her meds, and she did not. And of course, this is why Hospice played an important role at the end of her life.

Overuse is when people buy and use oxycontin recreationally. I personally have never felt any sort of high on my medicines since coming home from the hospital. Yes, in the hospital the Dilaudid and Morphine gave me some funky awake nightmares. Apparently I also liked to sing aloud in that first week. But now on my effective regulated amount, I do not feel any sort of altered brain state other than the inability to recall some words at the tip of my tongue. However, I did have a former student about five years ago OD and die on his pleasure of Oxycontin. I understand its a quick high and an awful death. Since then the pharmaceutical companies have been able to adjust the time released version so that when chewed, the tablets do not have the same effect they used to have. But people still overuse and abuse this drug.

There is so much negative stigma attached to this medication that true pain patients have to deal not only with their pain, but also the judgment of anyone who might find out they are “on Oxy.” And because of this, people make some pretty horrible assumptions about me. My own mother likes to call me periodically creeped out by what she reads on the internet.

“I am worried you’ll become an addict.”

“Mom, I am already an addict.”

“Whaaaat? What do you mean.”

I have to try and explain the difference between a patient who becomes medically chemically dependent and what she pictures in her mind: the gutter dwelling, hand shaking, drug fiend.

“I was dependent on this drug before I even left the hospital. It simply means that if I stop taking it, it will cause me to go into withdrawals. My body has to have it now. Sort of like you and coffee. . .”

Then she worries I will die of withdrawal. Or die in an overdose. You know how Moms are.

Some of my work pals crack jokes about it. (My real friends know better.) They seem uncomfortable knowing that I am on Oxycontin. After all, isn’t that the thing that kid was using that killed him. . .isn’t that the current “fun drug” all the kids are using?? They seem to think I am not “better” yet because I like my medicine.

They lack compassion for my dilemma: incapacitating pain or medication. Tough, limited choice, I have there, the woman who shifts from 3-8 on a ten point pain scale throughout the day

Even my former physical therapist seemed very uncomfortable that I was still on Oxy and seemed to be prying into why I was really taking it, as if the grimace on my face every time she wanted me to put my hands over my head isn’t enough. (Did you notice the word “former?” My surgeon helped me find a new, more educated PT). Chronic pain is so foreign and rare to most people, even in physical therapy centers, people do not really have proper sympathy for it, and pass judgment.

Given the recent revelation that the government is listening in to our phone calls and perusing our internet histories, I am even uncomfortable searching the phrase: “Weaning off of oxycontin.” That is how diligently it is protected. The other day, we got an unsolicited sales call from a company pushing a new pain product for chronic pain sufferers. Hmmm. Makes you wonder. So now, am I “THAT household with an Oxycontin user” to the unknown internet peeping toms?

I have simply learned not to discuss it. “Why don’t you drive?” Uh, cause I can’t turn my head. Notice how responsible I am even about driving. But that doesn’t matter. . .people equate Oxy users to heroin addicts. I mean do I have to carry around a little copy of my MRIs and show my surgery off like a baby sonogram? People do have botched knee replacements, they do have rare physical disorders, extensive back hardware like mine. There are people for whom Oxycontin is a God send that allows them to have a modicum of normalcy in their lives again.

Even some surgeons avoid prescribing Oxy. Giving him all that extra time he has historically needed, we called my doctor’s office one week early to get my prescription refilled earlier this summer. Low and behold, he was on vacation for two weeks. Uh-oh. Ignore how irresponsible it was of him to leave a narcotic patient without any notice. What’s worse, his partners, who were supposed to take his calls, never prescribe oxycontin (their poor patients-geez). I know now that they don’t feel any negativity about Oxy; they just don’t want to be watched by the government. My doctor is the youngest in the practice and the only one who does prescribe it. Unfortunately for me, because my doctor was not there, and his partners couldn’t care less about me, (or a lawsuit toward him), they were only willing to supply me with Lortab.

My pharmacist told me this was not enough of the opiate my brain needs, and I would be forced into withdrawal, which means anything from the sweats, creepy crawly skin, to pounding headaches, deep depression, vomiting, diarrhea and on and on.

How could they be so careless? They had my records. They could see I am not an abuser. . .but since it was not their responsibility. . . Since they care more about some FDA assessment than my well-being. . .nada.

Yet. . .Other doctors have done this to their own patients, dropping them from the drugs cold turkey. The patient is then forced into an expensive ER trip. How can an oath to “First, do no harm” equate into ignoring OPIATE PROTOCOL of weaning a patient? I believe this is what also causes overdoses. Patients, instead of being on a monitored weaning schedule, end up suffering withdrawal so badly, they get enamored by and then hooked into an illegal situation in order to alleviate their suffering. Suddenly they have a money grubbing pusher.

Luckily, my pharmacist knows me now and trusts me. She gave me a schedule to use my left over Roxy that fit with my original prescription to help me hang on until my doctor returned. But this was not the same as the time released Oxycontin and I did suffer through a mini-withdrawal, though nothing like what I would have gone through had I had nothing at all.

My doctor returned and was as frustrated as I with his partners: “You, I do not worry about. You have a major trauma. You’ve always been responsible.”. Thanks, Doc. I asked him if we should try going down again in mgs. Nope. “We tried that already. It didn’t work, remember?”

I get such mixed messages. I cut my finger badly this summer and declined extra pain meds from the ER doctor. He was impressed I was on such a low dose after such a major back injury, and ogled my scar. “Wow!” My dentist is concerned I’m still on Oxy. My old PT thought I was an addict. My new one thinks I am UNDERmedicating. . .Sigh!

Even one pharmacist my husband spoke to (not my own) said, “Ah, she has been on this way too long.”

Really? By whose/what standards? I read again and again of people being on this for years, on higher amounts. . .One case study I read in the NEJM, the patient has been on dosages for a decade. She is one who enters a methadone clinic periodically to bring her back off of it, and then restarts on a lower amount. Bless her doctors for understanding that some physical conditions are life long intolerable situations. She is a true pain management success.

However, this last month was my last visit with my neurosurgeon. Being a surgeon, and on call, he doesn’t have the time to monitor post surgical patients longer than a year past surgery if all is going well. My pins are solidly placed; my fusion is “taking”; my myelopathy is permanent. Other than my pain, my therapy, and my fluctuating numbness, there isn’t much to monitor. So I have been released to a reputable rehabilitative physiatrist.

We worried about what this would mean in terms of my pain management.

We worried for nothing. My new Doc was surprised I was managing on such a low dose, but he listened to me closely. “Yes,” he said, “Too many neighbors think they know best. You have to accept; this is your life. You are on one of the most effective pain killers available. I’m concerned you are too worried about what people think. . .”

We explored options. I will get a TENS unit soon to try. He considered epidural shots, but since I have a lot of what is called “light touch” pain, he nixed those. I’m far enough in the fusion to try NSAIDs again. I have now been taking Cymbalta which some research indicates is effective with the sort of pain I suffer. I can already, in just a few weeks, feel a huge difference. I am not pain free, but I feel less constricted in my movement, and “brighter in spirit,” more myself. Plus, my husband and I have figured how to navigate successfully the sexual side effects of Cymbalta. Maybe soon, I can begin weaning off the Oxy. . .?

Of course, after reading all the websites and chat threads about Cymbalta, I see that I’m just swapping one stigma-saturated drug for another. I’m still going to face opposition, maybe even suspicion and fear.

But this is my point in the first place. Chronic pain can be managed safely. Yes, there are foolish people who will misuse Oxy (or bath beads or Robitussin for that matter). Unfortunately, we live in a country where everyone wants to protect us from ourselves, and judge us harshly in such trendy ways, just so Society can feel better about itself.

And that can leave too many people with unnecessary pain. Quality of life really isn’t a relative term to people in chronic pain.

Beholders for Sale

Absolute Beauty?

To say that beauty is in the eye of the beholder, gives the beholder waaay too much credit.

Remember the girl you envied in high school for her awesome “claw”-the towering, teased out bangs that hung somehow both above and over her forehead like a bear’s paw waiting to open up her scalp? Still like that look? What about the mullet? Was it really EVER a party in the back? How about super heavy eyebrows? If this could just return, not only could salons glue on expensive lashes as they do today, but costly fur-extensions above your eyes! But we decided somewhere in the 90s that, No, that’s just hideous. What about parachute pants, orange tans, or monochromatic suits and matching makeup?

Obviously, we cannot be trusted to judge what’s beautiful, because our own tastes not only shift, but can be shaped by a constant barrage of media images. Kate Moss’s body would not have ever been seen as lovely three hundred, maybe even a hundred-fifty years ago. Ditto for a young Arnold Scwarzenegger’s, believe it or not. Rubens’ chicks anyone? Those sexy dumplings. . .Want one now?

Not only that, our own emotions make us ripe for ignorance. A guy whom I had long thought was modelesque, once I figured out after a few dates how utterly dull he was, suddenly all I could see was that crusty yuck that always seemed to be collected on the edge of his pink-rimmed eyes. And don’t tell me that’s never happened to you, where how you felt shaped what you saw, (more so when you were young.) Luckily, for me, my husband loves me in a way that his desire overlooks my own crusty eyes, and Rubenesque tummy.

When I was young, I could NOT see what the rest of womankind saw in George Clooney; his acting on ER annoyed me so much, those times when he’d tilt his head down at an angle, so he could look at a woman through his lashes, with a mild sneer on his lips, the way he tossed his gelled hair (hat was actually untossable.) So. Heavy. Handed. Uggh. But. . .as his acting improved, and he stopped vamping, his beauty came into focus. I still prefer Benicio Del Toro, but again, can you really trust my fickle taste?

The scientists can do all the studies they want about the power of facial symmetry, but I’d say our tastes are so subjective to things beyond arithmetic, whom/what we call beautiful/attractive is a powerful commodity that plenty of industries (make-up, celebrities, art, fashion, home decor, cars, etc. ) want to control, and then own. That alone proves that beauty is not in the eye of the beholder, but in the hands of whatever industry wants a piece of our “taste.” So let’s not call our view subjective; let’s call it producjective.

When a Parent Backs Off

I have two sons, with almost eight years between them. On most days, watching us from a secret Big Brother-like camera, our interactions and love are enviable. Some days you might consider calling DEFACs, or whatever family services acronym works near you. Both of my sons are gifted, based on their IQs. Both sons, to varying degrees have ADHD; my youngest, whose ADD is bad enough to warrant meds. also suffers from dysgraphia, the outie to dyslexia’s innie, and a mild memory issue. These keep him locked in special education, rather than soaring in “gifted” classes.

All things school came easily to me. Sure, I whined over the real life value of torturous calculus, but once I stopped weeping, I did it. For my youngest, this is not the case, and it makes it hard for me to relate. The current structures of the American school system frustrate him even more than you could understand. He faces ridiculous tests that, being a teacher myself, I know often cover irrelevant information, or worse the test writers phrase questions in such a way that the original intent of the objective is lost.

(For example, “Objective: students will apply a variety of sentence patterns in their writing.” Resulting Multiple Choice Test Question: “Read the following sentence, then choose the correct pattern that correlates with these sentences” is different from being able to actually create varied sentences. Thus, kids are drilled on recognizing these pattern types. Worse this question carries as much weight as recognizing poor verb usage, because each objective gets a question on the multiple choice test. I think the average American should be able to use verbs, but not label a sentence’s pattern as SVDOIO, right? Do most people even KNOW what I just wrote?)

Besides pointless testing that determines his future, every year my son meets teachers who, because of pay for performance rules that measure their failure rate, seem less interested in breaking his code and reaching him than in covering their asses. From the moment they meet him they begin collecting evidence of why it isn’t their fault he is failing, and send me messages, which go straight into their files: “Your son is very smart but he did not do his work. Your son sat and stared off into space. Your son took an hour to do what took everyone else ten minutes.”. Then they dust off their hands and say to themselves, they’ve done all they can do.

Because there is controversy over the existence of ADHD, some teachers just shrug it off, and gossip among themselves about my parenting, thinking if I just took his video games away, that boy would learn to work. Duh. Why didn’t I think of that?

Apparently, I put my child into the stigma saturated hellhole called Special Ed, because I want him to have more time on his Play Station, playing Destiny. I’m trying to cover up his “poor work ethic” by damaging his reputation with riding “the short bus.”. I prefer him to be called “dumb” by his mainstreamed peers, rather than cracking the whip.

I go through this the first few months every school year until his teachers realize I mean business, and I expect them to do their jobs, explaining, “The fact that he stares off in to space and cannot easily put his words on a page is WHY he is in special Ed. You cannot simply say he isn’t working and then wash your hands of him. That’s like saying about your deaf students, they can’t hear my lessons. You’ll have to solve that at home.” They squirm and get pissed off and often decide to pit themselves against me, sending me little CYA notes almost everyday.

Apparently, in order to allow a child to fail, teachers just have to say, I assigned XYZ, and he didn’t do it.

But here’s the thing about special education. It is supposed to be SPECIAL. If you recognize that my child is “super smart” and YOU are the expert, then you need to figure out how to get knowledge into his head, and then glean evidence that he knows it in some other way.

When we were kids, teachers could do just that: shape a lesson in a special way for a special kid. Can you imagine Annie Sullivan trying to teach Helen Keller in today’s schools? Would she have said, “Ma’am, your child seemed to stare off into space when I assigned that reading passage. She fails because she didn’t complete her work.”. The girl went off to Princeton because she had a woman who cracked her code.

SO, each year, I get riled up; it takes me months to get teachers on board with the whole it is your JOB thing. I understand their frustration; I struggle during his homework time. ( I mean WHY does a kid who can do the word problem in his head have to explain his process in WORDS? Why can’t he just write the answer in numbers? And why does it take my kid two hours, filled with tears and hair loss.) I get the teachers’ frustration But they are his teachers not I. If I were,I could adjust his lessons; if I were, I’d have a special degree in his disability, right?

I was particularly riled up this past week, facing the, “your kid’s lazy” crap from a fresh batch of teachers. I have a number of “Twelve Steppers” in my life who advise me; from an anti-codependent stand point, trying to change his teachers is too controlling of me. I’m supposed to “let go and let God.” I hear, your son is old enough now, he can suffer his own consequences.

I heard the same advice when my oldest was in the ninth grade and not working up to his potential. But what if he flunks? Well, summer school. Well, what if he doesn’t get into a good college because of that! Well, he’ll figure it out on his own.

I yelled, punished, rewarded, all things a parent does to try and get their kid in line. But I eventually took the advice and let go. He got himself through, improving as time went on. He began improving. No, he did not go the Harvard, though he had the IQ. He goes to a community school by choice to save money, and lives at home still, and we have a calm, loving friendship now. The twelve steppers say it is because I backed off.

But I just don’t think that advice will work with my youngest. To say that he has to live with the consequences of his actions assumes he has a choice here. His disability doesn’t allow him many choices. He cannot choose to spell that word right or even notice it is wrong. He cannot choose to ignore the misbehaving kids in the next row (and special Ed classes lump learning and behavior problems together. There are plenty of actions he struggles to ignore.) So does that make me codependent because I am trying to control his education?

Really?

Sorry. I’d rather continue to mother him properly and be labelled a control freak than let him slip through the giant cracks in our education system. Too many of his teachers would be relieved to just ignore him.

The End of the B Movie! (aka The End of Quality)

Hollywood has always created both masterpieces and schlock. I have never felt that every movie produced needed to be the best possible work ever, though, if you’re going to do it, why not do your best, right? But, fine, there is a niche for cheap crap, or even expensive crap in the theaters; we used to call these B films. And rightfully, everyone involved knew it was a B film before selling or buying it.

Somehow it feels as if the movie industry has no concern, no recognition anymore for this boundary, trying to pass off B flicks as quality, oscar worthy films; it is destroying the joy of crap, for crap’s sake, and the thrill of masterpiece theater. Sure, in the past, a movie might really want to be great and it flopped, but at least you could tell someone was trying. But now there is a laziness, where, you can almost hear the director thinking, “Ah, who cares. It’s got a star. . .why worry about the quality. No one will notice.” (Think LONE RANGER for instance.) Enter ELYSIUM . .old news, but perfect to illustrate my point.

This movie in the ads, looked stellar: Can’t! Wait! Matt Damon? Jody Foster? It MUST be awesome! However the only redeemable element about this mess is how it gave the boys and me loads to discuss (read:criticize) in terms of its many distracting plot wrecks. We bonded as a family over our displeasure. It was neither a good film, or fun B Flick. And, spoiler alert, aside from being extremely derivative, and predictable, and self-righteous, here’s what we else couldn’t ignore in the film:

1. In almost two centuries into the future, The Wealthy escape to a segregated paradise in space because Earth is a polluted, starving hellhole-not just Delhi-Bad, but escape-the-planet bad. But. . .Where is the starvation? If so, how are there tons of people in every nook and cranny, but no dead bodies piling up as history proves there would be? Why does the granny peasant have a cart filled with fat swine, fresh pork on the hoof and no one is paying one lick of attention to her? No one is trying to knock the eighty year old over for the meat. (and how is granny moving the cart?) People are smeared with sweat and grime. . .implying hovels and outhouses, but there is clean running water coming from the taps. . .implying there is still an infrastructure.
2. There are still hospitals on Earth with doctors and nurses. So doctors-the wealthy class in our age- are not going to move to Elysium? Oh, they would be obsolete there. So wait, they don’t make any money on earth? Huh? Do they still have medical schools in this hellhole? Who pays for this? Structure that the plot doesn’t support.
3. the world is in chaos. But there are still many jobs that look suspiciously like the ones now-production, computing, doctoring? So is the real problem smog then? Where are the face masks? Where are the inevitable skin diseases? Oh, wait there’s a kid on crutches. I guess smog causes leg troubles.
They still have personal cars, perhaps souped up jalopies from the present age. But one guy who has an underground network of computers also has a handful of personal spaceships. So either he’s the equivalent of a modern day billionaire with a handful of Rolls Royces, in which case, why isn’t HE on Elysium? Or spaceships are accessible; if so, then why the heck are cars even still around? (And where is the gas secured in all this chaos?)
4. A group of spaceships attempts to smuggle people (dirty, broken, crazed people) into Elysium. Okaaaay? Why? The place looks sort of small. Even with the new “citizen” tattoos, where are these stowaways going to live, work, eat? Or are they hoping to quickly break into a rich house, climb into the tanning-slash-healing bed, get fixed, then hop a ride back home to Earth? It’s a little like someone trying to break into Buckingham Palace to live, and hoping no one will notice.
5. Matt, Our hero, is offered and rejects an amazing variety of life enhancing pills in the beginning, sort of like SOMA from Brave New World. But there is still yearning and distress on Earth? WTF? Are we supposed to assume Elysium is really like a resort that one aspires to instead of a separate society?
6. Our Hero, having been imprisoned many times, at some point decided to go straight, so he could save money to get to Elysium. So in this broken world, a job is more stable and financially rewarding than crime and black market? Isn’t that a little bit of why the wealthy are trying to secure their way of life in the first place: to get away from crime/criminals? How is Our Hero different from them then. . .Is he more kind because he hugs his “criminal friend”? Again, the stability of Earth doesn’t fit the movie’s premise.
7. BIG ISSUE: Robots do many human jobs, like acting as parole officers, flying planes to and from Elysium, being police officers who have legs and hands and minds that are humanoid, BUT our hero has a job screwing nuts, bolts, and pushing buttons on a dangerous radiation-filled assembly line. Weren’t humans replaced by machines on assembly lines back in Ford’s day? Yet they’ve got very human robots who could easily screw in a bolt? Or the rich schmo from Elysium who has to travel to the factory, he can’t give directions from home? From space, Jody can lock down all air travel, and summon a sleeper-agent on Earth, but this guy can’t get a production company in line from space, with or without robots?
8. There is a machine that can revamp not only human tissue, but human (and viral) DNA in mere seconds. But so far these fear-filled wealth mongerors have not come up with an effective form of birth control? What about some handy population control machines? Hey, lady, come walk over here by this sensor. Stand still a minute. Op, there you go. No more babies, for you, little lady! They can’t swing that since that is what ruined earth to begin with? And the wealthy I know are more philanthropic than anyone else I know. Why exactly are these folks so greedy with their magic machine?
9. Power hungry lady-Jody-is willing to risk it all, stage a coup, and murder the president of Elysium. Machines can graft, repair bone and flesh in mere seconds. She gets a fatal wound. Nurse can save her to put her in machine later, and Power woman says, “no, thank-you” and dies? Huh? But why? (I think Jody, the actress, had just had enough and literally said, I’d rather die. . .)
10. WORST of all. . .Premise of film is Rich vs. Poor, Elysium vs, Earth, equality vs. Inequality, Jody vs. Matt. All rising action is along those lines. Final show down is between, not Jody and Matt, but Matt and angry, crazy dude, who was seemingly not right in the head earlier, for reasons unrelated to premise. He’s extra pissed because Matt blew off his face, not because Elysium is elitist, not because he was poor. . .so Matt has to take down not “the power”, but crazy dude. That could have been set in any movie, any time, for any reason- which thereby negates the whole flipping premise. Sure, crazy dude mentions early on that he wants Matt’s brain chip to wield some power, but that never comes up again. Not only does this climactic scene destroy the plot arc the writer tried to set up, it gives us good reason to want an Elysium of our own: to get away from crazy, dudes like him.

And here’s why it annoys me enough to write. How hard would it be to fix these many flaws?

Show people truly starving. Don’t give Matt a real job, or give everyone hellish jobs, like slaves. Do have computer geek but get rid of smuggling ships, or at least show us a few folks who have been able to successfully sneak on. Or not. We can learn about lifesaving machines in some other way. Get rid of any semblance of a regular, albeit dirty, world on Earth. Explain how population control is too expensive for the rich to install;. Elysium is easier. Let computer geek try to steal chip AND ship from rich guy to put Matt on Elysium. Kill off Kruger. Go ahead and save his life in machine. Have Jody kill him in surprise twist. Have Jody strap on (smirk) and get into a fist fight with Matt. Who among us wouldn’t love that scene!

How hard was that? But NO. . .The creators disrespect their audience so much that they cannot be bothered to write a tight, plausible script; They don’t care even when the bullshit is obvious in just about every single scene. I read a horribly written book once where a cop (secretly) shoots and kills a bad guy in the front yard of a mansion, to rescue freaked out damsel in distress. He and the love interest then go inside and have a light lunch. They just go about their business, onto the next plot development. No one else ever notices dead guy. No one ever asks. The dead body just never comes up again. It is still on the front lawn I suppose. Hollywood is more often than not, phoning it in, just like that crappy novel, but expecting us to applaud anyway.

What were Jody and Matt thinking? (The heavy handed social-political statement was so intrusive that even THAT can’t explain why they signed on to this film). Shame on them; but then. . .look at the ratings. . .it’s as if viewers don’t even recognize a B Flick anymore.

So are we then to blame for this overt laziness?

Depression: Too Common to Care

Robin Williams, please forgive me. I am going to inadvertently throw you under the bus. I loved you. I still do. I always will, though sometimes I admit. . .I turned away from you when you’d get manic on talk shows. When I was thirsty for “you”, it was too tough to watch you instead isolate in front of an audience. It is painful now to watch as we, your people, shower you with affection AFTER your darkest hour, and excruciating to see how we are using your death as a platform to discuss the thorns of the depression business.

I say “we” because I am climbing on that platform, too.

People are saying (everywhere) how dismissed it is as a disease. Insidious, destructive, misunderstood, but most of all dismissed. Dismissed because of the supposition that people who suffer from its jaws are mentally frail, maybe even lying. . .at the very least self-involved. We are demanding that more light shine on this disease, and asking that people do not vilify the sufferer.

More light?Is it really any less recognized as a disease than any other?

In terms of advertising, anti-depressant meds take up almost as much air time as headache and arthritis meds.. Bus riders in my city see posters advertising local therapy centers. Schools send home, along with how to notice ADD, documents to help parents/teachers notice depression among preteens, along with the suggestion to “speak with the child’s pediatrician” about these signs. The Golden Gate Bridge literally has a hotline in the middle of the bridge, with signs telling would be leapers to get help.

We do not come across as a nation that closets the topic of depression. If anything, we seem on the capitalistic side of it, perfectly willing to farm the profits of its biological effects, if we could just get all those obviously depressed folks to come in for help.

Therein lies the problem. Diagnosing the illness is often anecdotal, rather than medical. People aren’t sure, or maybe unwilling to see it in themselves. Even Williams in an interview years ago tried to shrug off the implications that he was mentally ill.

So what we really are complaining about isn’t depression being recognized as a disease. Instead, we are upset about how others feel about us and our depression stories.

Do you dislike Mike Douglas because he battles cancer, or Vice President Biden for his heart disease? How about Mary Tyler Moore for Diabetes? I am sure you might have felt pity for them or at least sympathy. But remember Steven Wright’s humor. . .the depressed guy gig, where he uses a flat voice, zero facial affect, and whines? Who wants to be around that?

I had a professor ten years ago who battled severe depression. She was extremely open about it. I felt for her because I suffer from depressive episodes related to PMDD. At least I know that in a few days I won’t want to toss myself off the top of any buildings anymore. I will want to climb out of bed with purpose again. . .

But then. . .I felt like every time Prof. So-and-so took three weeks grading our work, every time she missed a thesis meeting, every time she came late to class. . .her students got a play-by-play of her empty, mentally exhausting weekend. She would be prostrate, tearfully apologetic. But also. . .an eensy bit self-righteous. Who are you students to expect me in my depression to work!?

When I suffered from debilitating morning (read: 24/7) sickness with child two, my students certainly weren’t forgiving. Nonstop vomiting is no good excuse. When my best-friend is hospitalized with complications of her kidney transplant, people expect her work to be finished still. Cancer insurance exists to cover the costs of missing work while one undergoes chemotherapy, implying that no work, equals no pay. Yes, these are recognized diseases, but they come with expectations and not really all that much sympathy. Honestly, my diabetic friend learned long ago people don’t really want to talk about that either.

I, in fact, do not want people to talk to me only about my disability, and their interest is really limited.

So is it that people suffering from depression want more sympathy? More attention? More forgiveness? More sick days? Like I said, it’s not really like ANY disease gains that much acceptance or warmth from others.

But to concede, I know there is stigma. Teachers have to admit (and most do not) if they have ever been treated for depression on their applications. They also know to keep it to themselves if they seek treatment. (You’d better say you were seeking therapy for family counseling and not depression.). Everybody fears a teacher “going postal” at school, right? Infact, even the term “going postal” illustrates the ridicule that depression receives. It’s a term, coined by jokesters, about the worst results of depression. No one says, when a man dies of lung cancer, “He went all carcinogenic on us, man!” Noone mocks it. . .Unless, being depressed, the lung cancer patient shoots out the chemotherapy floor.

I have found that stigma tends to exist around two extremes: the unknown and the questionable common. Extremely rare birth defects, rare forms of cancer, injuries from strange events, like spontaneous bone breakage or flesh eating viruses freak people out. They rubberneck briefly, then disappear. But very common inflictions also make people uncomfortable if there is an “unsavory” or distasteful quality to it. Thus, HIV has stigma, breast cancer does not. Scabies, no stigma, crabs, yes. Fetal Alcohol Syndrome vs. Down’s syndrome. ADD. vs. Depression. One is okay and worth our sympathy. The other is too low to discuss. (Plus, the that is judged seems to have culpability attached to it. Or so, people think.)

So just what’s unsavory about depression really. Where’s the blame?

Frowns? Tears? Constant Criticism? Negative Outlook? Self involvement? Drug or alcohol abuse?

Death?

Worse. It’s Death by what we see as selfish choice.

Who are you to leave us hurting? Who are you to choose to leave the rest of us slogging through the daily sludge without you? Depression is so common, almost everyone will suffer from it some point, but we do not all succumb.

It’s the “I walked through ten miles of snow up hill in my bare feet every day to go to school” mentality of the rest of the world that keeps depression dirty.